This site is intended for patients and caregivers.
For healthcare professionals
This site is intended for patients and caregivers.
For healthcare professionals
We offer a range of free in-person and virtual events throughout the year to help you learn more about atypical-HUS, access resources, and connect with others living with the disease.
aHUS TOGETHER EVENTS
These events feature a physician who's an expert on atypical-HUS. You'll learn about the disease and an option for managing it, hear a personal story from someone living with atypical-HUS, and have an opportunity to ask questions.
July 01, 2022 | 7:00 PM
Atypical-HUS Disease & Management
Learn about atypical-HUS, find support, and ask questions of experts and others living with the disease.
July 01, 2022 | 7:00 PM
Tips & Tricks: Daily Living with Atypical-HUS
Learn helpful strategies, find support, and ask questions of experts and others living with the disease.
July 01, 2022 | 7:00 PM
Working with your Healthcare Team
Learn how to advocate for yourself, find support, and ask questions of experts and others living with the disease.
ENGAGE aHUS EVENTS
These regional events are hosted by a Patient Education Manager (PEM), who will provide education about atypical-HUS and share resources and community connections that can support you on your journey.
July 01, 2022 | 7:00 PM
Understanding atypical-HUS: a journey to a rare disease diagnosis
Learn about the role of the complement system in atypical-HUS, how atypical-HUS symptoms may impact your life, and discuss the importance of managing your symptoms.
July 01, 2022 | 7:00 PM
Prioritizing you: an Atypical-HUS program
Learn about the importance of self-care, how to create a self-care plan for yourself, and tips and tools that can help support mental wellness and manage stress.
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